Celebrating Julie Lyons: A Champion of Resilience on World MS Awareness Day

Chelsea Day

May 30th marks World Multiple Sclerosis Awareness Day—a time to recognize the more than 2.8 million people worldwide living with MS. At the Challenged Athletes Foundation, we’re honoring this day by celebrating Julie Lyons, an Alameda, California resident whose journey with multiple sclerosis showcases the transformative power of adaptive sports. 

In her 60s, Julie embodies a truth we see every day at CAF: people at any age, with any progression in disability, can keep smiling, keep moving, and keep discovering new possibilities. 

From Diagnosis to Determination

When Julie Lyons was diagnosed with multiple sclerosis in 2009, she decided the disease wouldn’t define what was possible. 

“For me, having MS is a challenge, not one I ever really wanted, but one I have to live with,” Julie reflects. “I can’t really change who I am as a person.” 

Two people outdoors, one seated in an off-road wheelchair, smiling, with trees in the background.

And who Julie is runs deep: a former SUNY Cortland Red Dragon who competed in lacrosse, cross country, and indoor track. A physical education and nutrition major who became a sports physical therapist and California State-licensed acupuncturist. A passionate triathlete, distance runner, and 100-plus mile cyclist who has always found joy in movement. 

MS may have progressively affected her mobility—causing muscle weakness on her left side, drop foot, and reduced grip strength—but it couldn’t touch her athletic spirit. 

Finding Her Way Back to Sport

As MS symptoms progressed around 2014, Julie experienced what she initially thought was a twisted ankle but turned out to be a fracture related to foot drop. It was a turning point that could have sidelined her.  

Instead, Julie fought back with characteristic tenacity. She advocated for herself, reaching out directly to Bioness after reading about their L300 Go system—a functional electrical stimulation device that helps people with foot drop and muscle weakness walk more effectively. 

Adaptive hockey athletes practicing on ice; one sits in a sled while another stands with skates, both in jerseys.

“Through my tenacity and letter writing, through Kaiser, I was able to get this device,” she said. “It enabled me to stay in my career. I was able to keep working, and I was getting around quite nicely.” 

But Julie wanted more than just to get around. She wanted to swim, golf, play, and push her boundaries. 

A West Coast Red Dragon Connection

Julie’s introduction to CAF opened doors she never imagined. She began attending CAF clinics and events throughout Northern California, trying sports she’d never experienced before: adaptive golf, ice hockey, alpine skiing, curling, wheelchair basketball, rock wall climbing, cross-country sit-skiing, and yoga. 

At those events, Julie was mentored by world-class Paralympians, including Janet Penn, who won bronze in giant slalom at the first Paralympic Winter Games in 1980 and returned to capture gold in 1984. Julie’s athletic journey extended to golf, where she participated in CAF clinics at The Olympic Club and regularly attended CAF + ELEVATE Golf Academy activations in Oakland. Her commitment was recognized with a CAF sport expense grant, supporting her continued development in adaptive athletics. 

Group of six people on a golf course holding a large check made out to Julie Lyons.

“My physical mobility has been challenged; however, my athletic desire wants to continue to participate,” Julie explains. “CAF has been a wonderful experience for me.” 

Then came an unexpected surprise at a yoga clinic in Fremont. Julie met Eva Gordon (formerly Eva Kristof), CAF’s Northern California Senior Programs Manager, and discovered they were both SUNY Cortland alumni—Red Dragons united by adaptive sports nearly 3,000 miles from their East Coast alma mater. 

“I hesitated, because I was going by myself and didn’t know anybody,” Julie recalls of that yoga clinic. “But I thought, I should just go. It was a great clinic, with lots of instructors and lots of support.” 

When Eva casually mentioned playing women’s ice hockey in college, Julie asked where she went to school. “She said, ‘Oh, it was a small school, you wouldn’t know it, Cortland,'” Julie remembers with a smile. 

Since that day, the two have connected at event after event, creating a series of photographs capturing their Red Dragon reunions: 

  • December curling and sled hockey clinics at Sharks Ice in San Jose 
  • January alpine skiing at Achieve Tahoe 
  • Wheelchair basketball at the Warriors Basketball Academy in Oakland 
  • Nordic skiing and biathlon shooting at Tahoe Donner Nordic Cross Country Center 

Now, Julie has arrived at CAF events carrying a SUNY Cortland banner—a tribute to the university that shaped both women’s athletic journeys and their commitment to empowering others through sport. 

Discover Your Potential Through Adaptive Sports
CAF offers grants for adaptive sports equipment, mentorship, and access to clinics and events across the country.

An Avid Swimmer Who Never Stops Trying

Today, Julie maintains a daily outdoor pool swimming routine that keeps her mind and body strong. She’s an active member of the golf community in NCGA, member of the Northern California Adaptive Golf Club, and continues participating in adaptive clinics throughout the Bay Area. 

An adult in a sports wheelchair holds a basketball in a gym.

Her progression with MS hasn’t diminished her enthusiasm for trying new things. From the ice rink to the golf course, from the basketball court to the ski slopes, Julie demonstrates what’s possible when determination meets opportunity. 

“I’ve always been a person who was passionate about movement,” she says. “I wasn’t going to let MS stop me in my tracks.” 

The CAF Difference: Breaking Down Barriers

Julie’s story illustrates why CAF’s mission matters so deeply. The organization addresses the significant barriers that can keep people with physical disabilities from being active: the high cost of adaptive sports equipment and the lack of accessible resources and mentorship. 

Through CAF’s Northern California programs, Julie has accessed: 

  • High-quality adaptive equipment for multiple sports 
  • Coaching from experts, including Paralympic athletes and PGA Pros 
  • A supportive community of fellow athletes 
  • Venues specifically equipped for adaptive sports participation 
  • The encouragement to keep pushing boundaries at any age 

“I wouldn’t be able to do it without the Bioness and without the Challenged Athletes Foundation,” Julie affirms. 

Person preparing to putt on a golf course with a mobility scooter nearby.

A Message of Hope This World MS Day

Julie Lyons’ journey reminds us that a diagnosis doesn’t define a person’s possibilities. Whether you’re in your 20s or your 60s, whether you’re newly diagnosed or navigating disability progression, there’s always room to smile, to move, to try something new. 

Her friendship with Eva Gordon proves that the CAF community creates connections that go far beyond sport—building relationships rooted in shared values, mutual support, and the simple joy of showing up for yourself and each other. 

As we observe World Multiple Sclerosis Awareness Day, Julie’s story stands as a beacon for anyone facing their own unexpected challenges. She reminds us that while we can’t always change our circumstances, we can choose how we respond to them. 

And sometimes, that response looks like picking up a golf club or getting into a pool—ready to embrace whatever comes next. 

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